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- | ====== How we got here ====== | ||
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- | To understand how we got to this point, please read: // | ||
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- | ====== About This Book ====== | ||
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- | This book is not to memorialize Karen, rather it is to shine light upon the conditions from which she suffered and to help those she left behind. | ||
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- | This book is dedicated to those who cannot stand up because of Intracranial Hypotension caused by a Cerebrospinal Fluid (CSF) Leak, those that cannot lie down from Idiopathic Intracranial Hypertension (IIH), those so incapacitated from Chronic Pain they cannot have a life, those maimed by Fluoroquinolone Antibiotics, | ||
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- | I shared a large part of Karen' | ||
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- | **Karen gave her life for this book, please make something good come of that and help change the world for the better for all.** | ||
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- | ====== Foreword from front of book ====== | ||
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- | //This glimpse into Karen’s own writings offer hints of the depth of her suffering, yet like many with chronic disabling illness, much of what she endured was not openly shared. | ||
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- | //I never met Karen. | ||
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- | //She was being treated for spinal CSF leaking. | ||
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- | //For those with spinal CSF leaking, despite frequent profound disability, the correct diagnosis remains elusive for months, years and even decades, as in Karen’s case. Even after a diagnosis is made, timely access to appropriate diagnostics and treatments is often far from optimal. | ||
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- | Connie Deline, MD | ||
- | Co-founder, | ||
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- | ====== Text on the Back Cover of the Book ====== | ||
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- | There are four parallel stories running through Karen' | ||
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- | What it is like to live in Chronic Pain every day, the pain of systemic tendonitides caused by the Fluoroquinolone antibiotic poisoning from Levaquin® (Levofloxacin) and what it is like to be ostracized by family and friends to end up alone with no help, no support. Too constantly hear from doctors "that there is nothing wrong with you" "you are just doing this to get attention or pain pills" | ||
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- | The idea behind this book is that if you see yourself in one of those threads that you can put this book into the hands of someone, family, friend or doctor and say "This is me!" in the hopes that they 'get it' instead of thinking of you as a crazy hypochondriac out to get attention or drugs. | ||
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- | If someone you know who has Chronic Pain gave you this book, they want you to understand, through Karen, what they are dealing with, possibly every moment of their life. What your friend or relative wants to hear the most from you after you've read what Karen had to say is "//I believe you// | ||
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- | Your brain is meant to be floating around in your skull and when it is not due to Intracranial Hypotension from a Cerebrospinal Fluid (CSF) Leak or the opposite Intracranial Hypertension (too much pressure), things are getting yanked on that were never meant to be yanked on, causing debilitating pain that the word ' | ||
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- | // | ||
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- | Foreword by Connie Deline, MD, Co-founder, Spinal CSF Leak Foundation. | ||
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- | If you have Intracranial Hypotension caused by a Cerebrospinal Fluid (CSF) Leak; Idiopathic Intracranial Hypertension (IIH); Chiari; Chronic Pain; Ehlers-Danlos Syndrome (EDS); Invisible Disabilities, | ||
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- | "// | ||
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- | <WRAP tip> | ||
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- | Amazon will donate 0.5% of the price of your eligible AmazonSmile book purchases to the Spinal CSF Leak Foundation whenever you shop using AmazonSmile via the links below. | ||
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- | Select the Spinal CSF Leak Foundation after signing in to AmazonSmile. | ||
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- | AmazonSmile is the same Amazon you know. Same products, same prices, same service. | ||
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- | Support the Spinal CSF Leak Foundation charitable organization by starting your shopping at [[http:// | ||
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- | ====== Buy book to support the Spinal CSF Leak Foundation ====== | ||
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- | {{: | ||
- | 100% of the royalty from the purple cover book goes to the // | ||
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- | **The cost of the [[https:// | ||
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- | The defunct publisher Create Space //no longer sells directly// | ||
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- | ====== Book ====== | ||
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- | The books started out as Karen' | ||
- | The book has been heavily edited and refined since that was written and has //now been professionally edited and formatted// | ||
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- | Sometime in the future, Real Soon Now, the book contents will be back ported to replace that so they are both the same. | ||
- | I have not been able to muster the emotional energy this requires from me to do it yet. :-( | ||
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- | ====== Appendices ====== | ||
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- | These appendices are obscure things that Hubby and I learned on our journey together. | ||
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- | Some of these were removed from the book to reduce page count. | ||
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- | * [[: | ||
- | * [[: | ||
- | * [[: | ||
- | * [[: | ||
- | * [[: | ||
- | * [[: | ||
- | * [[: | ||
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- | ====== Author Bio ====== | ||
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- | {{page>: | ||
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- | ====== Warnings for Leavaquin ====== | ||
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- | How many people have actually read the nearly 67 pages of warnings for Levaquin? | ||
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- | Grab it before they move it or hide it: | ||
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- | http:// | ||
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- | ====== Book's Facebook Page ====== | ||
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- | A [[http:// | ||
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- | ====== Typos ====== | ||
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- | The book has a // | ||
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- | I just love the [[: | ||
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